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Spina Bifida

Our Church Opens Minds through awareness about the variety of disabilities that affect people every day.  There is no us and them when it comes to disabilities.   All people are differently-abled and all people will experience some disability, at least once in life.  A parish Opens Minds whenever it takes concrete steps to exercise God's compassion for people who are differently-abled physically, mentally or emotionally.  

 

Spina Bifida is a neural tube defect and  the most frequently occurring permanently disabling birth defect. It is the incomplete formation of the spine and spinal cord, which is thought to occur before the 28th day after conception. This defect affects approximately one out of every 1,000 newborns in the United States. Approximately, 40% of all Americans may have spina bifida and may not ever know they have the defect.  Please consider the tools and resources provided here for those with Spina Bifida and refer to links for other specific disabilities on the left sidebar.

 

Local

Spina Bifidia Association www.sbawny.org - enhance the lives of individuals and families affected by spina bifida in the eight-county Western New York community by providing education, information, social support, recreation and advocacy services and linkages to other relevant service providers.
 
Support Group
Parent and Family Support Group - meets monthly at the Northwoods Medical Center on Robinson Road in Amherst. For more information, call (716) 446-5595.

 

For more assistance from the Diocesan Disability Action Team, contact Dennis Mahaney or call 716-847-8393.

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